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Each year, International Women’s Day inspires us to celebrate the resilience, remarkable achievements, and incredible strength of women around the world.
Strength isn’t always about bold headlines or sweeping global movements. Sometimes, it manifests in the subtle, quiet moments that resonate deeply.
Sometimes it appears as if you are battling fatigue when your body refuses to cooperate. Other times, it means showing up despite brain fog or joint pain. Sometimes, it means making it through International Women’s Day 2026, and with the redesign of Wots Her Name Again?, it feels like the right moment to share something more personal.
My journey with chronic illness from Lupus has been challenging. This blog has always focused on living beautifully, even when life is complicated.
And Lupus has certainly been one of those complications.
Yet it has also taught me something: life doesn’t end with a diagnosis. Sometimes it simply changes direction.
Growing Up Watching My Mum Live With Lupus
My journey with Lupus started long before I ever received my own diagnosis; it was a path shaped by observations and experiences that opened my eyes to the complexities of this condition.
My mum was diagnosed when I was eleven years old. At that time, there was very little awareness about Lupus compared to today. Conversations about autoimmune diseases rarely occurred in public. Instead, I observed the illness quietly unfold in our everyday life.
I witnessed the fatigue that made even simple tasks feel exhausting. The joint pain hindered her mobility, forcing her to slide down the stairs on her bottom because it was too painful for her joints. I also noticed the lesions on her skin and the butterfly rash across her face.
What struck me the most was how little understanding I had about the illness, even in moments when I thought I grasped it. It was an eye-opening realisation that highlighted the complexity of what I was facing.
She faced challenges as some doctors overlooked her symptoms, and her loved ones found it hard to understand the effects of Lupus. Many employers were unaware of the prevalence of chronic illnesses. At one point, she received a startling prognosis, but she remained hopeful and determined.
As a child, I may not have grasped the medical terms, but I surely recognisedrecognised the incredible strength it took for her to forge a fulfilling life. Reflecting on it now, I see that she truly embodied the spirit of International Women’s Day, inspiring me long before I understood its significance.
When Lupus Became My Story Too
Years later, Lupus became an integral part of my life story. When I received my diagnosis, I realised I was fortunate to have a wonderful support system that many may not have. My mum was a guiding light, helping me navigate the challenges of living with Lupus. Together, we learned how to manage my energy and advocate for my health during medical appointments, making the journey feel much more hopeful and empowering.
She truly grasped the unpredictability of life—the good days, the challenging ones, and everything in between. With heartfelt encouragement, “It’seminded me, “It’s not over till it’s over!” Let’s keep pushing through together to thrive, not just survive!
I also understand that not everyone diagnosed with Lupus has access to that kind of support.
That is one of the reasons I share my experiences here.
Because sometimes another person’s story can make the journey feel less isolating.
Doesn’t Mean Life Stops
Lupus has imparted one of the most profound lessons in my life: A diagnosis opens the door to new possibilities, encouraging us to embrace change and co-thrive! It’s not the end; it’s a chance to live life to the fullest.
Living with Lupus invites a thoughtful approach to management. It’s your energy. It’s about embracing rest days and prioritising your wellbeing alongside yourdoesn’tons. This doesn’t mean sacrificing joy or meaningful experiences! You can still explore new places, chase your dreams, and create beautiful moments. It’s all about discovering new ways to thrive. Let’s celebrate the journey and all the incredible experiences still ahead!
This message resonates beautifully as we celebrate International Women’s Day, honouring the incredible strength and resilience of women with Lupus across the globe. International Women’s Day 2026: Rights, Justice, United Nations’ theme fWomen’srnational Wom” n’s Day 2026 is “Rights. Justice. Action. For ALL “Women and Girls.” This inspiring theme emphasises the vital need to bridge the social and legal gaps impacting Let’s worldwide. Let’s make a difference together!
Join us in embracing the spirit of generosity with our “campaign the e, “Give to Gain”! This powerful message inspires us to uplift others through mentorship, empowerment, and knowledge sharing. Together, let’s create a ripple effect of positive change and foster a community where everyone can thrive!.
For countless women battling Lupus, advocacy becomes a powerful and personal journey. It’s more than a cause; it’s about demanding to be heard, fighting for the medical care they deserve, and shining a light on the often unseen struggles of living with an invisible illness. Their voices matter, and their stories are essential in raising awareness and fostering change.
Organisations such as Lupus UK are helping to improve understanding and support for people living with Lupus.
You can learn more through their article, “What Is Lupus?,” which explains the condition, its symptoms, and treatment options in clear, accessible terms.
Read the article here: What Is Lupus?
If you’re newly diagnosed or supporting someone who is, exploring this guide can help you better understand Lupus and how it affects the body.
Another excellent resource is the “NHS guide What Is Lupus?, which provides essential insights on recognising symptoms, understanding diagnosis, and exploring effective treatment options. Dive into a wealth of medically reviewed information that empowers you to take charge of your health journey!
Read the article here: What Is Lupus?
If you’re looking for reliable medical information about Lupus symptoms or treatment options, the NHS guide is a helpful place to start.
Following In My Mum’s Fearless Footsteps
One of the most powerful examples of courage I’ve witnessed came from my mum.
Years ago, she decided to take on an extraordinary challenge — completing a skydive to raise awareness for Lupus. Watching her step outside her comfort zone for such an important cause stayed with me.
At the time, I remember feeling a mix of pride and disbelief. Skydiving is not something most people casually sign up for, yet she did it with determination and bravery.
Her courage planted a seed.
Ten years later, I found myself standing in the same position, preparing to take the leap myself.
Not just for the adrenaline, but to honour her strength and continue raising awareness for Lupus.
You can read the full story in my post about my tandem skydive for Lupus awareness
Ten Years Later — My Turn
A decade after my mum’s skydive, I found myself stepping into a harness and purple jumpsuit, preparing to jump from a plane.
Standing there, I felt nervous, excited, and incredibly proud.
Skydiving isn’t just about the thrill — it’s about courage, pushing past fear, and using moments like this to raise awareness for causes that matter.
For me, it represented something deeply personal.
It was a way of honouring my mum’s bravery and continuing to use my voice to raise awareness about Lupus.
A Message To Women Living With Lupus Or Any Other Chronic Illness
If you’re diving into this while navigating the challenges of living with Lupus, I want to share something important with you.
You’re truly not alone on this journey, and your experience is incredibly important. I recognise the amazing strength you show in managing hidden fatigue, the resilience it takes to cope with brain fog, and the courage it requires to keep pushing through pain. Your bravery inspires, and brighter days are ahead!
Navigating life with Lupus may slow your steps, but it never diminishes your incredible worth. Embrace your journey—you are more valuable than you know!
You are still capable of building a life filled with purpose, joy and ambition.
And sometimes, just making it through the day feels like a remarkable victory deserving of celebration! — especially Women’s National Women’s Day.
If you’re navigating Lupus on your own, these posts may also help.
Celebrities Living With Lupus
In Celebrities Living With Lupus, I explore well-known women who have spoken openly about their experiences with the condition. Seeing public figures share their journeys can help normalise conversations around Lupus and raise awareness of invisible illness.
Read the post here: Celebrities Living With Lupus.
If you’re looking for inspiring stories of resilience, this post highlights women who are thriving despite Lupus.
Maintaining friendships and social connections can be challenging when your energy levels fluctuate. In Social Life With Lupus, I share practical insights into navigating relationships while managing chronic illness.
Read the post here: Social Life With Lupus.
If you’ve ever worried about how Lupus might affect your friendships or social life, this article offers a helpful perspective.
Living With Lupus Creators & Communities
Navigating life with Lupus can feel overwhelming, particularly at the beginning of your journey. Alongside medical care, having access to supportive communities and lived experiences can make a meaningful difference. The following organisations and creators provide education, advocacy and community spaces for people living with Lupus.
LupusChick – Global Community For Women With Lupus
LupusChick is a global platform created by Lupus advocate Marisa Zeppieri. It focuses on empowering women living with Lupus through education, lifestyle resources, advocacy and community connection.
Learn more:
https://lupuschick.com
Instagram: https://www.instagram.com/lupuschickofficial
Facebook: https://www.facebook.com/lupuschick
Twitter/X: https://twitter.com/lupuschick
Heal With Samantha – Honest Conversations About Lupus
Heal With Samantha is a YouTube channel dedicated to sharing real-life experiences of living with Lupus and chronic illness. Samantha discusses diagnosis, treatments, lifestyle changes and the emotional realities of navigating autoimmune disease, helping others feel informed and supported.
Watch and subscribe:
https://www.youtube.com/@HealWithSamantha
Instagram: https://www.instagram.com/healwithsamantha
TikTok: https://www.tiktok.com/@healwithsamantha
Facebook: https://www.facebook.com/healwithsamantha
Nara Aziza Smith On Living With Lupus
Model and creator Nara Aziza Smith has spoken openly about her experiences with Lupus and how it has influenced her lifestyle and wellbeing. Through her beautifully produced cooking and family-life content, she offers a glimpse into balancing creativity, health and everyday life whilst managing a chronic condition.
Watch the video:
https://www.tiktok.com/@naraazizasmith/video/7475482486504557870
Follow Nara Aziza Smith:
Instagram: https://www.instagram.com/naraaziza
TikTok: https://www.tiktok.com/@naraazizasmith
YouTube: https://www.youtube.com/@naraaziza
Cori “Princess Broadus” – Speaking Openly About Life With Lupus
Cori Broadus, also known online as Princess Broadus, has spoken publicly about living with Lupus since childhood. Diagnosed at just six years old, she has used her platform to share the realities of managing chronic illness, including health challenges and lifestyle changes, while continuing to pursue her career and creative projects.
Through her social media, she offers an honest glimpse into navigating life with Lupus, reminding others that even with setbacks, it’s still possible to move forward and build a life you love.
Follow Cori Broadus:
Instagram: https://www.instagram.com/princessbroadus/?hl=en
TikTok: https://www.tiktok.com/@princessbroadus
YouTube: https://www.youtube.com/@princessbroadus
If you know of another Lupus creator, community or resource that has helped you or a loved one, feel free to share it in the comments below. The more we share our experiences and resources, the more we can support one another.
As we mark International Women’s Day 2026, this post serves as a powerful reminder that strength comes in many shapes and sizes. Embrace your unique form of resilience!
Leadership and activism can shine brightly at times, while at others, the quiet resilience in navigating chronic illness reflects a steadfast commitment to living a meaningful life. Both paths are worthy of recognition and celebration.
If you are living with Lupus — or supporting someone who is — I would love to hear from you.
What valuable lessons has your Lupus journey imparted about resilience, and in what ways has it influenced your quest for a life filled with passion and joy?
Your story could resonate deeply with someone and provide the inspiration or support they need. Let your voice be heard and make a difference!
