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Living with Lupus can often feel isolating, as it’s a condition that many people do not understand or have even heard of. However, I found a group of courageous Lupus Warriors on YouTube, the Lupus Warriors, who were brave enough to share their own lupus diagnosis stories, treatment experiences, and other aspects of living with Lupus. Their bravery and resilience are truly inspiring.
Watching relatable content from others living with Lupus greatly helped me live my best life as a Lupus Warrior. It encouraged me to share my Lupus journey, not only to raise awareness about Lupus and those affected by these conditions, but also to connect with others who may be going through similar experiences.
Check out my list of 10 Inspiring Lupus Warriors YouTubers You Should Follow.
You Look Okay To Me
You Look Okay To Me by Lupus Warrior Jameisha Prescod is more than just a digital space for people with chronic illness. It’s a vibrant community that welcomes everyone. It features many illnesses and video essays exploring illness, culture, and identity, fostering a strong sense of belonging and understanding.
https://www.youtube.com/@YouLookOkayToMe
https://www.jameishaprescod.com/about
http://www.instgram.com/ YouLookOkayToMe
Sheyenne Lovato
Find Magic in the Mundane with Sheyenne as she Romanticizes Life while coping with LupusLupus.
http://www.instagram.com/whossheyenne
Live | Hope | Lupus
Lupus Warrior Samantha has created advocacy videos on chronic illness for the past 10 years. She made the YouTube channel Live Hope Lupus to create a space for those with chronic diseases to get information and support.
Samantha’s video: Lupus 101
RollinWithTheRobinsons
Check out Lupus Warrior Dani as she shares tips about affordable makeup looks, fashion, and a lifestyle you can relate to.
http://www.youtube.com/@RollinWithTheRobinsonz
Instagram: http://www.instagram.com/danniloxx
TheOfficialBiancaMedia
Meet Lupus Warrior Bianca, an award-winning inquisitive storyteller who wants to educate the masses. She feels a social responsibility to leave her community better than she found it, and her content is both informative and empowering.
www.youtube.com/@TheOfficialBiancaMedia
Instagram: https://www.instagram.com/theofficialbiancamedia/
Simply Sybella
Meet Lupus Warrior Sybella, a creator with a Lupus on a mission to speak, teach & share her truth, which moves people into action and makes them smile.
www.youtube.com/@SimplySybella
Instagraminstagram.com/simply.sybels
TikTik: tiktok.com/@simply.sybella
ManWithLupus
Lupus Warrior Ryan runs the ‘Man with Lupus’ channel. Ryan is about to be diagnosed with Systemic Lupus Erythematosus (SLE). SLE and is taking us on the journey with him as he begins the healing process, sharing stories about his symptoms as well as his Lupus Story. His project is significant as it provides a real-time account of the diagnosis and healing process, offering insights and support to others going through similar experiences.
StyledUnderLupus
Introducing Lupus Warrior Nathalie, an intuitive astrologer and mental/emotional health expert with Lupus. Learn about her Lupus healing journey:
https://www.youtube.com/@StyledUnderLupus
Instagram: https://www.instagram.com/ntuitivehealing
Meet Lupus Warrior Kelli, the Creator of Lupus, who is dedicated to enhancing the lives of those living with Lupus and other autoimmune diseases.
www.youtube.com/@morethanlupus
Marisa Zeppieri Caruana
Lupus Warrior Marisa has an online community and NY nonprofit that offers tips, resources, education, and support for Lupud patients and their families.
It is a testament to what one person with enough passion, drive, and vision can do to change the lives of countless others. It all started with one little blog in 2008, which eventually became a winning website.
www.youtube.com/@MarisaZeppieriCaruana
http://www.Instagram.com/LupusChickOfficial
Living with Lupus or any chronic illness presents many challenges in daily life. But with determination and a positive outlook, anything is possible. I hope that the above 10 Lupus YouTubers and their success stories provide you with living proof of that.
Did you enjoy this post? If so, please join the community, comment below and share!
Lets our part to increase Lupus Awareness
Discover more about my journey with Lupus by checking out these insightful posts:
- Lupus Symptoms: 22 Signs of Lupus You Shouldn’t Ignore
- ThisIsLupus:11 Essential Tools To Help You Self-Advocate Effectively
- 9 Important Facts for Family & Friends Of Lupus Sufferers
- How to Support Someone with Lupus?
- What Not To Say To Someone With Lupus
- Living with Lupus – The Lesser Known Side of the Story
Disclaimer:
The information and tips in this post are based on my experiences and are provided for general information and educational purposes to aid other Lupus warriors in finding their own coping mechanisms. They do not constitute medical advice for any specific medical condition or situation. This Wots Her Name Again? should not be used or relied upon to diagnose or treat a problem, disease, or medical condition.
Discover Valuable Resources for Navigating Lupus – Your Guide to More Support:
Rest assured, if you or a loved one are diagnosed with Lupus and need further assistance or information, these reliable and trusted resources can provide the help you need.
Lupus UK
Lupus UK: A Key Resource for Those Affected by SLE Lupus UK is a voluntary organization in the United Kingdom that crucially provides information and support to individuals affected by systemic lupus erythematosus (SLE).
Lupus Trust
The Lupus Trust (previously St Thomas Lupus Trust) is dedicated to supporting lupus research at Guy’s Hospital and raising awareness of
Hibbs Lupus Trust
A Personal Journey Turned into a Mission The Hibbs Lupus Trust, a registered charity founded in 2011 by the Hibbs family, was born from a personal journey with Lupus and a strong desire to create meaningful change.
